Wednesday, July 23, 2008

Kody's Update

First, I have to apologize about not updating yesterday.
After we came home from Kody's appt. in Orlando, the boys convinced me I needed to get out in the pool with them..and that's exactly where we stayed until dinnertime.
Then, a quick trip to Wally for some yarn, came home just in time to watch our every Tuesday night fave. show "Wipeout" {too funny, I'm tellin' ya!}. I did some knittin', picked Kaysha up and **BAM**, just like that it was bedtime baby.'s yesterday's update today. :0)

We met Kody's new NP and she was awesome!!
Miss Allison took her time explaining and showing us in detailed diagrams the results of Kody's EEG and where in his brain the activity was coming from.
We definitely will keep him on Keppra for his seizures.
We talked about his shunt and she feels, based on his symptoms, the need for a programmable shunt will, in the near future, become a necessity.
As it turns out, his shunt is over draining which is just as problematic as under draining.

We talked in depth about his medications and are now weaning him off Orap {tic meds} and increasing his Strattera to the max dosage.
Fingers crossed his tics will diminish. Lately they have been either OK or coming in episodes of severe.

No guesses on his voice and Dr. Barr is looking into another expert that can possibly help us. They will let us know when they find one.

All in all, as always, we were very happy with his Dr. and NP..they were awesome, as well as the staff who could not be more sweeter {especially the girls there who have fallen in love with Bear and are smitten with his new "hawk".}.

Karlio is happy to go to every appt., not only because he's loves his Bear too, but because they keep like a trillion family cooking magazines there and he keeps clipping out the recipes he wants to try...but, you didn't hear that from me. ;0)

When our appt. was over, we went a 1/2 block up the road and had a picnic lunch at a cute little park that I wish we could have stayed longer at. There was a cool statue I wanted to snap a pic. of for all you gals out there but didn't get a chance. I will next time though..believe that. LOL!!

After some sandwiches, chips and my beloved Coca Cola, we were back on the road tossing around a ton of ideas about combining Kody and Kolin's b-days next month by taking them to the Orlando Science Center, which is right next door to Kody's Neuro. Doc.
Those two boys love anything science, so we think they'll have a blast.

Here's a quick picture I took of Kody yesterday at the park..

Total goof the whole time. :0)

Welp, I better jump off and start the breakfast brigade.
Have an AWESOME day everyone!!!!

Love, Kim


Wonderful World of Weiners said...

Glad to hear all is well for now. And that pic? Awesome doesn't seem like a strong enough word!!

Hallie :)

Debbie said...

Great pic of the Bear!! I am happy everything is good with him.

Can't wait to see that statue! LOL.

Have a great Wednesday!!

God Bless~

Jaime T. said...

Haha, nice pics Kody. LOVING the hair lately. Glad to hear the appointments went well! I'm sure you'll get to test out the recipe's that your dad "borrowed" from the doc's office soon enough.

Jaime in CT :)

Anonymous said...

Oh, my gosh, is that underarm hair??? Wasn't it just yesterday that he was a little boy!!!???

Terry Josephson said...

Jeez, Kody, I swear you aged about 5 years since the last time I saw you! It's GREAT to see you thriving and doing so well! Keep on keeping on...

Terry Josephson
Julianna Banana's dad
Winnipeg, Canada

Anonymous said...

Dear K family,
I am glad to hear the appointment went well and that there is a new plan in place. Hopefully adjusting the meds will work perfectly. I will continue to pray for you.
Love and hugs,


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