The New Shunt Is In!!

Surgery is done...it went GREAT! He had two surgeons working on him, one from the belly and one from the head,the both met in the middle so it was fast. If he is feeling up to it we could go home tomorrow!!!

Surgery Today

Kody's shunt surgery should be around noon. They are capping off his drainage around ten to force his ventricles bigger which gives him headaches but in order for surgery to go safer it has to be that way. :(

I'll update as often as I can, it should take 2-3 hours.

Thank you everyone for always being there for us. :)

One Step Closer...

ID is testing CFS {brain juice} today, everyone here including me have positive thoughts it will turn up just fine and we can move forward to surgery in the morning. One step closer to getting HOME!! :)

These are from two days ago when Kolin came to visit and definitely cheer us both up.:)





TTYL....have a great day all!!

Monday Morning

Dr. O, one of Kody's neurosurgeons came in this morning....

His CSF tested negative on Friday, which is great it means the antibiotics are working. Today they are testing it again, if it is still negative then surgery to put in his new shunt is set for Wednesday, no time yet. If all goes well, we will be home by the weekend!!

Thank you everyone for the prayers and well wishes!!

Sunday Bear Update

We're dealing with IV's from hell for the past few days, last night being the worst.
His veins just don't want to cooperate probably due to so much scar tissue.
Anyway, they put a few in last night so far the last one is working OK. They suggested a PIC line but his neurosurgeon said this morning he's hoping he'll be off antibiotics by Wednesday so it's too late to get involved with that.

As of yesterday, he's able to walk around as long as I hold his bag of brain juice next to him. Karyelle and Kolin are coming over today and later I'll be taking Kolin back to Leesburg while Karyelle hangs with Bear.

Thank you everyone for the prayers and all the new FB friends.:)

A Much Better Day

Last night he got hit hard with another headache but this morning his neurosurgeon came in and adjusted the settings on his draining tubes so that they drain a little bit more.
Within thirty minutes that worked like a charm.:)

Right now we're waiting for Karyelle and Kolin to show up...Oh, that reminds me, Kolin won his game today 32-2!!
Many thanks to Kayara and my friend RZ for sending me updates and pictures.

Here we are today, bored and wanting out of this hospital sooooo bad...



And here's Kolin at today's home game against Monteverde,FL.



Have a beautiful day everyone!!

Kody's Friday Update

Sorry I haven't been able to update more often, the hospital internet goes out a lot or it's just real, real slow most of the time.

Anyway, it's working this morning so I'll make this quick.

His color is coming back and he is in no pain, well except where all the stitches are but honestly he doesn't complain about that.
He accidentally pulled out the IV in his neck so right now his nurses are working on that.

Last night he ended up with a nasty reaction to the Vancomicyn {the antibiotic he's been getting thru his IV} so they had to discontinue that, load him up with Benedryl thru the IV and switch to IV Penicillin.

This morning was the first morning he actually had an appetite, so that's good. It's torture watching him refuse food cuz he's a teenage boy, I'm so used to watching him eat all day every day. :)

This morning we were told that they finally have answers as to what has happened and it seems the infection is caused by the same organisms that cause acne. They tell us for this to happen is very rare.
I asked what else we can do to avoid this and the answer is probably nothing more then what he does for his acne and also we all have to up the amount of hand sanitizer we use, like leaving a bottle in every room and using it often {at home}.

We still have to wait for that cyst in his belly to go away before they can put him back into surgery for his new shunt so we will probably be here for till the first weekend in October, if all goes well.

Thank you so much for all the support, encouragement and prayers.

Love you all!!

PS. I still need to download my phone pictures on the laptop so as soon as I do today, I'll put some up on here.
I hope nobody minds that I probably will show his head where the tubes are draining externally.